Sickle Cell Community organizes kiddies treat & sensitization on management of sickle cell disorder.

The sickle cell community has organised a kiddies treat and a sensitization lecture on management of the disorder for children to Mark the world sickle cell day on the 19th of June 2019.

Asmau  Ahmad the president to the community said the event was aimed for the children to be familiar with what triggers their crisis, measures to avoid the crisis  and also educate their parents on the disorder  itself  and how to manage  the crisis. The event also gives opportunity for the kids to socialise with other children with  sickle cell and also have fun.

Also most parents  who we
address as care givers have little knowledge on  how to manage children living with sickle cell disease, the event spurs doctors that gave tips for the parents and also for the kids in order to manage their lives.

Saleh Faruq Gqgarawa the spokeperson to the sickle cell community stated that Most children living with sickle cell feel isolated and do not socialize with other children on circumstances  like stigmatization and others. The event provided the opportunity for the kids to look up to adults living with sickle cell and how they have achieved in life making them understand that sickle cell does not hinder their success.

"we are also calling on the attention of the government especially the federal government to give  more emphasis in addressing sickle cell disease, we want the government of the day to take a look at the issues related to sickle cell disorder or how it can be managed by not just creating awareness on genotype testing before marriage but also on measures to address persons living  with the disorder across the nation".